Fibromyalgia Awareness Month: Your Pain Is Real, and You Are Not Alone

Fibromyalgia Is Real: My Journey Through Pain, Misdiagnosis, and Validation

May is Fibromyalgia Awareness Month—a time to honor and uplift the millions of people silently battling this often invisible illness. This month, we celebrate strength, spread awareness, and say loudly: Fibromyalgia is real, your pain is real, and you are not alone.

Living with fibromyalgia feels like your brain and body have turned against you. For me, it’s as if my internal pain switch is stuck in the “on” position. Something as gentle as a hug or a friendly tap on the shoulder can send shooting, excruciating pain through my body. It’s hard to explain this to people who can’t see it, and harder still to feel like you have to prove that your pain exists.

The Road to Diagnosis Wasn’t Easy

My journey began 12 years ago when my shoulder froze. It literally became stuck and stayed that way for years until I finally had surgery. I thought that would bring relief—but the pain never went away. It became my constant companion, interfering with my sleep, mobility, and everyday life.

At first, I was diagnosed with Complex Regional Pain Syndrome (CRPS). While that explained some symptoms, it never quite fit. It took three different doctors and years of uncertainty before I finally received a fibromyalgia diagnosis. My insurance eventually covered the FM/a+ test, a blood test marketed as a way to diagnose fibromyalgia, though it remains controversial in the medical community.

Still, getting that diagnosis brought me some level of validation. It didn’t take the pain away—but it reminded me that I wasn’t imagining things, that my suffering wasn’t in my head, and that I wasn’t alone.

What Fibromyalgia Feels Like

Fibromyalgia is more than just widespread pain. It often includes:

• Fatigue that doesn’t improve with rest
• Brain fog (often called “fibro fog”)
• Sensitivity to touch, sound, and temperature
• Digestive issues
• Sleep disturbances
• Anxiety and depression

It can be isolating, especially when people don’t understand or downplay what you’re experiencing. But this month—and every month—we aim to change that narrative.

Raising Awareness, Building Community

Fibromyalgia may not be visible, but that doesn’t mean it isn’t real. That’s why raising awareness is so important—not just to educate others but to help those suffering feel seen, supported, and empowered.

If you’re living with fibromyalgia, know this:

You are not alone.

You are not imagining things.

And your story deserves to be heard.

Whether you’ve just received a diagnosis or have been navigating this condition for years, there is a community here that gets it. Let’s continue to uplift each other, advocate for better research, and educate the world on what fibromyalgia really is.

Join the Conversation

Have you or a loved one experienced fibromyalgia? Share your journey in the comments or on social media using #FibromyalgiaAwareness and tag us so we can support and amplify your story.